Angel Flight NE prides itself on partnering with national & international organizations that work with patients and families to ensure they receive the best treatment and support.

Below is a listing of some of the organizations we work with to ensure that distance is never an obstacle for patients to access the care they need:

Rare Disease/Disorder Organizations

• 17q12 Foundation
• A Cure in Sight
• AMDA (Acid Maltase Defiency Assocation) 
• Adenoid Cystic Carcinoma Organization International
• Avery’s Hope
• AXYS (Association for X and Y Chromosome Variations)
• Cerebral Palsy Resource Guide
• Cure CMD
• CureGM1
• Cute Syndrome Foundation
• Epilepsy Foundation
• E.WE Foundation
• FOXG1 Research Foundation
• Glut1 Deficiency Foundation
• K-T Support Group (Klippel Trenaunay)
• KIF1A.ORG
• LGS Foundation
• Lymphangiomatosis & Gorham’s Disease Alliance (LGDA)
• National Gaucher Foundation
• NORD (ANGEL FLIGHT NE IS A GOLD MEMBER AS OF JAN. 2024!)
• PCD Foundation
• PFIC Advocacy and Resource Network, Inc.
• Phelan-McDermid Syndrome Foundation
• Prader-Willi Syndrome Association
• PRISMS (Parents and Researchers Interested in Smith-Magenis Syndrome)
• Sisters’ Hope Foundation
• Slc6A1 Connect
• Sturge-Weber Foundation
• TANGO2 Research Foundation
• Tatton Brown Rahman Syndrome Community
• The Akari Foundation
• The Cute Syndrome Foundation
• The Mast Cell Society
• The RYR-1 Foundation
• Undue Medical Debt
• Wake Up Narcolepsy, Inc.
• Wilson Disease Association
• Vestibular Disorders Association
• VHL Alliance

Housing/Transportation Organizations

• Hospitality Homes
• Ronald McDonald House- New York

Additional Partners

• Tommy’s Place

If you are from an organization that would like to join this list and help support Angel Flight NE within your patient & family groups, please email us at wecare@angelflightne.org.